What Do Caregiver’s Need?

I am a person who has caregiver’s in my life. I’m extremely grateful for the support I have in my life. They understand that it is nearly impossible for me to carry the weight of the effects of my trauma alone, and they bring beautiful empathy and compassion.

Lately, I’ve been pondering the question, what do caregiver’s want and need when living with, caring for, or loving a person with a physical, emotional, mental, or chronic illness? This group is often left out of the care plan. They are our unsung heroes. The friends, family and support team who, without them, we would flounder.

When I was struck with PTSD  my whole world turned upside down.  As with any illness, it doesn’t just affect me, my illness affects my whole family. My symptoms can be challenging for my family, friends and support team.  They have taken the time to learn about trauma and PTSD and are right there to help me live the most “normal” life I can lead right now. No one, ever, makes me feel that I’m a burden. Feeling like a burden is my own personal demon that I fight on a daily basis.

But what do caregivers need when living with, loving, befriending or working with a person who has a chronic, physical or mental illness?

My husband loves it when I go out of town for a few days. He has respite. People ask why don’t we travel together? Well, really, he needs a break. When I’m gone his worries are less. He deserves all the pizza, binge-watching sci-fi,  just hanging out, no worry days he can get. It’s what he needs so he can recharge. He doesn’t ask me to go out of town, but when a situation arises and he feels comfortable with my traveling companion, he encourages me to go. When I’m gone, we stay in contact every day, and he’s thrilled when I come back home,  but he needs that respite.

He also belongs to an online support group for caregivers of someone with PTSD. At first, I will admit, I was fearful that he was talking to other caregivers. I soon realized that it was my own immense guilt I was feeling and transferring to him. I felt like, I drove my husband, who had no interest at all in computers or anything to do with social media into needing support from strangers online. I quickly got over that, because he needs support.  He needs to be speaking to people who get the day-to-day challenges of living with someone with PTSD.

When I ask my family, friends, support system what can I do? What do you need? The answer is always the same, and I think appropriate. They say, “you don’t need to do anything but keep healing. You’re doing great, you are doing exactly what you need to be doing.” I believe that’s the best answer to give someone living with an illness. Our job is to cope with, heal, and live a contented life within our deficits. We have to trust our caregivers will get the support they need so they can have the same kind of happiness in life.

So, my question is: If you are (or were) a caregiver, family member, part of a support system, or a friend of someone with a physical, mental, emotional or chronic illness, What do you need?

 

Thank you for reading my memoir, Untangled, A Story of Resilience, Courage, and Triumph

Advertisements

8 thoughts on “What Do Caregiver’s Need?

  1. Giovanni Carlo December 12, 2017 / 10:18 am

    Yes, it is noble profession

    Liked by 1 person

  2. Giovanni Carlo December 12, 2017 / 12:56 am

    I think caregiver just need hug and smile and appreciation

    Liked by 1 person

  3. Alexis Rose November 8, 2017 / 3:34 pm

    Wow, thank you so much Didi. Im really honored!! ❤️❤️

    Like

  4. dancingpalmtrees November 4, 2017 / 3:49 pm

    I will retire from my current job but I still must work because I won’t be 62. One has to be 62 to collect social security.

    Liked by 1 person

  5. Alexis Rose November 4, 2017 / 2:48 pm

    Thank You for sharing the reality of caregiving and your wish list. These are all valid wishes. I hope when you retire (I think thats coming soon?) some of those wishes turn into reality. Especially sleep and better health.

    Like

  6. dancingpalmtrees November 4, 2017 / 2:34 pm

    Having been a caregiver for both my parents who died from cancer 20 years ago and caring for my brother Stephen my needs are always overlooked but here’s my wish list.
    A break.
    A fully paid for 3 month vacation. Need not be out of town. I really do love New York city.
    Sleep. Thanks to unrelenting stress I’ve had chronic insomnia for years.
    More time with my brother Stephen
    The ability to make enough money to pay my bills and rent without working an extra 20 hours of overtime every week.
    A home cooked meal.
    Me Time.

    None of my wishes will come true any time soon which explains why I’m sick but that’s why it’s called a Wish list.

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s