Feeling Relevant While Living With a Disability

46 thoughts on “Feeling Relevant While Living With a Disability

  1. We do live in a culture that measures the worth of our work by the money it brings. I get sucked into that myself. But it’s completely crazy. People whose work is destructive bring home huge amounts of money. Raising children (what should the world value more?) is unpaid. Teaching children is badly paid. I could go one but, yeah, point made. Just to remind us both.

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  2. It’s not safe, defining how much you’re giving to the world based off of materialistic evaluations, you should focus on making your life meaningful by sharing your experiences with others, our world is always defining how useful we are, by materialistic things, and, sometimes we forget what’s most important to ourselves, by conforming to these ideals of how we should be or act…


  3. Yep. Going back to work has been the hardest obstacle for me, and a lot of the time still is. So much of who I was came from what I did for a living, and it’s taking time for me to change my perception of myself. I can and do work full-time, but it’s a battle both to do it and to not beat myself up because I feel like I’m not nearly as good as I was!

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  4. You are a writer! That is an occupation!
    I work less than full time and I am likely guilty of contributing to the invisibility of my disability. I dread being a burden, of making others feel bad for me, of being that person no one wants to be around. I want it to be invisible to me too.
    Some day I want to be a writer, too.

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  5. amybelle

    You are not alone in how you are feeling. I cannot work due to bipolar and BPD. I use my blogging and studying to make me feel I am doing something with my life. I guess you are like myself, you must be doing something, you can’t just do nothing in your life x

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  6. It’s really bizarre. I am so sorry to hear that you are struggling. I can certainly relate to feeling guilty about not contributing financially, but you have to remind yourself that you are so much more than that. I can imagine that it is difficult for you that your disability is invisible.

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  7. I don’t think that I would mind not working as much if other people didn’t read so much into it. One of the first things that someone says when they meet someone new is “So what do you do?” But for me, people stare at the wheelchair and tell me that I’m so lucky that I just sit around all day and get a check. “You don’t understand how hard it is to work and pay for daycare,too.” I did work until I couldn’t walk anymore. We also have to pay for summer care because our son is autistic. Get a grip and count your blessings. “Normal” people feel like their job is their identity. My lack of a job is seen as my identity by most people.


  8. It is so hard to stay within the confines of what the body can do when the spirit is willing to do more. I admire your voracious ambition but also your acceptance and respect towards your body and it’s needs. I can relate and am thankful for this reminder today.

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  9. Thank You, Rosy. My life is enriched since you’ve come into it. Today, when you shared, “we dance until it rains” I got goosebumps. You are such a bright shining light my friend! ❤️


  10. Rosy Kirk

    Just to let you know, your words, and wisdom have brought so much into my life.
    Never underestimate the power of your words.
    Proud to call you friend!

    Liked by 1 person

  11. Oh I can feel your frustration. I totally get it, and get how mortifying it can be when PTSD gets the better of us. You are not stupid or useless, but understand how those tapes start playing. Its so strange how invisible the symptoms are and how it can sneak up on us. I hope everything worked out with the fence!

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  12. You’ve put into words exactly how I feel when PTSD gets the better of me. The effect on my concentration has recently enabled (!) me to screw up when trying to organise a replacement for the picket fence at the front of my house and I feel stupid, embarrassed and useless. This is mortifying when I am, in essence, a highly organised, practical woman. Thank you!

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