Feeling Relevant While Living With a Disability

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42 thoughts on “Feeling Relevant While Living With a Disability

  1. Alexis Rose September 18, 2017 / 1:32 pm

    You are not alone! ❤️

    Like

  2. lhalvor September 18, 2017 / 8:20 am

    Thank you for this. It’s a mirror for my minds wandering at 3 am. It tells me I’m not alone.

    Liked by 1 person

  3. Ellen Hawley September 16, 2017 / 3:39 pm

    We do live in a culture that measures the worth of our work by the money it brings. I get sucked into that myself. But it’s completely crazy. People whose work is destructive bring home huge amounts of money. Raising children (what should the world value more?) is unpaid. Teaching children is badly paid. I could go one but, yeah, point made. Just to remind us both.

    Liked by 1 person

  4. Alexis Rose September 16, 2017 / 2:19 am

    Thank You! And thank you for buying the book. I hope you like it. ❤️

    Liked by 1 person

  5. manyofus1980 September 16, 2017 / 12:02 am

    You contribute so much butI have to say I feel similarly to you and it feels so crummy! I will try to buy your book this weekend if I can I’ve been wanting to for a while now. xx

    Liked by 1 person

  6. Alexis Rose September 10, 2017 / 12:32 pm

    I know we both struggle with this! My desire and my ability doesn’t align so then it’s a continued reaccepting of the affects of the trauma. 😐

    Like

  7. summerSHINES September 10, 2017 / 5:49 am

    I feel exactly like this xxxxxx it sucks doesn’t it 😔😔

    Liked by 1 person

  8. Alexis Rose September 8, 2017 / 12:55 pm

    Im so glad you are practicing changing the perception of yourself and working within your abilities. We are always a work in progress, arent we! 😊

    Liked by 1 person

  9. Alexis Rose September 8, 2017 / 12:52 pm

    Thank you for your feedback. You are absolutely right, I have to remember to shine my light and call myself a writer. Have a great weekend!
    😊

    Liked by 1 person

  10. taurusingemini September 8, 2017 / 8:51 am

    It’s not safe, defining how much you’re giving to the world based off of materialistic evaluations, you should focus on making your life meaningful by sharing your experiences with others, our world is always defining how useful we are, by materialistic things, and, sometimes we forget what’s most important to ourselves, by conforming to these ideals of how we should be or act…

    Like

  11. Ashley September 8, 2017 / 5:03 am

    Yep. Going back to work has been the hardest obstacle for me, and a lot of the time still is. So much of who I was came from what I did for a living, and it’s taking time for me to change my perception of myself. I can and do work full-time, but it’s a battle both to do it and to not beat myself up because I feel like I’m not nearly as good as I was!

    Liked by 1 person

  12. martina.franklin.poole September 8, 2017 / 2:16 am

    You are a writer! That is an occupation!
    I work less than full time and I am likely guilty of contributing to the invisibility of my disability. I dread being a burden, of making others feel bad for me, of being that person no one wants to be around. I want it to be invisible to me too.
    Some day I want to be a writer, too.
    M

    Liked by 1 person

  13. amybelle September 7, 2017 / 10:54 pm

    It is, I’ve met some amazing people x

    Liked by 1 person

  14. Alexis Rose September 7, 2017 / 10:39 pm

    Yes, we do what we can to feel included in the world we live in. The blogging community is wonderful. 😊

    Like

  15. amybelle September 7, 2017 / 10:11 pm

    You are not alone in how you are feeling. I cannot work due to bipolar and BPD. I use my blogging and studying to make me feel I am doing something with my life. I guess you are like myself, you must be doing something, you can’t just do nothing in your life x

    Liked by 1 person

  16. askagimp September 7, 2017 / 10:07 pm

    It’s really bizarre. I am so sorry to hear that you are struggling. I can certainly relate to feeling guilty about not contributing financially, but you have to remind yourself that you are so much more than that. I can imagine that it is difficult for you that your disability is invisible.

    Liked by 1 person

  17. Alexis Rose September 7, 2017 / 9:41 pm

    Wow. Im so sorry to hear that people tell you, you are lucky to sit in a wheelchair and get a check. That’s extremely insensitive!!

    Like

  18. Alexis Rose September 7, 2017 / 9:38 pm

    Thank you! Im glad that this resonated with you. It sure helps knowing that Im not the only one feeling this way. It can be frustrating. I go in and out of acceptance all the time. 💐

    Liked by 1 person

  19. askagimp September 7, 2017 / 8:29 pm

    I don’t think that I would mind not working as much if other people didn’t read so much into it. One of the first things that someone says when they meet someone new is “So what do you do?” But for me, people stare at the wheelchair and tell me that I’m so lucky that I just sit around all day and get a check. “You don’t understand how hard it is to work and pay for daycare,too.” I did work until I couldn’t walk anymore. We also have to pay for summer care because our son is autistic. Get a grip and count your blessings. “Normal” people feel like their job is their identity. My lack of a job is seen as my identity by most people.

    Like

  20. grace to survive September 7, 2017 / 6:53 pm

    It is so hard to stay within the confines of what the body can do when the spirit is willing to do more. I admire your voracious ambition but also your acceptance and respect towards your body and it’s needs. I can relate and am thankful for this reminder today.

    Liked by 1 person

  21. Alexis Rose September 7, 2017 / 5:47 am

    Thank You my friend. That means a lot to me!! (Although I wish you didn’t have to feel it too) ❤️❤️

    Liked by 1 person

  22. Blue Sky September 7, 2017 / 2:59 am

    Alexis, you are not alone! I do understand the disappointment. I feel it sometimes too. I am so proud of you for all that you have and continue to accomplish. Hugs!

    Liked by 2 people

  23. Alexis Rose September 6, 2017 / 10:58 pm

    Thank You, Rosy. My life is enriched since you’ve come into it. Today, when you shared, “we dance until it rains” I got goosebumps. You are such a bright shining light my friend! ❤️

    Like

  24. Rosy Kirk September 6, 2017 / 9:16 pm

    Just to let you know, your words, and wisdom have brought so much into my life.
    Never underestimate the power of your words.
    Proud to call you friend!

    Liked by 1 person

  25. Alexis Rose September 6, 2017 / 5:21 pm

    Oh I can feel your frustration. I totally get it, and get how mortifying it can be when PTSD gets the better of us. You are not stupid or useless, but understand how those tapes start playing. Its so strange how invisible the symptoms are and how it can sneak up on us. I hope everything worked out with the fence!

    Liked by 1 person

  26. Alexis Rose September 6, 2017 / 5:12 pm

    Thats so frustrating isnt it! Im so sorry that is happening to both of us. Glad we’ve connected so we understand that we are not alone in feeling this way about our illness and work. ❤️

    Liked by 1 person

  27. Alexis Rose September 6, 2017 / 5:10 pm

    Thats really interesting Nicole. Im glad that people are talking about it!

    Like

  28. First Night Design September 6, 2017 / 4:52 pm

    You’ve put into words exactly how I feel when PTSD gets the better of me. The effect on my concentration has recently enabled (!) me to screw up when trying to organise a replacement for the picket fence at the front of my house and I feel stupid, embarrassed and useless. This is mortifying when I am, in essence, a highly organised, practical woman. Thank you!

    Liked by 1 person

  29. Eleanor at Beurownlight September 6, 2017 / 3:48 pm

    I can relate so much to this right now. We are the brave ones because we want to contribute, we want to achieve and we do despite our illnesses. I have bipolar and anxiety… and my anxiety stops me from sustaining work at times.

    Liked by 1 person

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